Stopping to Enjoy Little Moments

Sometimes before bed, little tummy’s get a little bit hungry.

Dipping

There’s nothing quite like a warm glass of milk and some cookies for a bedtime snack.

Eating

It’s especially fun when you can pretend that your cookies are glasses….mind you it’s a little difficult to see through them, but it’s still fun to pretend, isn’t it?

Seeing

Sometimes its nice to just stop and look at all the little details. Some of those “little” things” won’t stay little for very long and it’s so nice to be able to stop and take a minute to record and remember the little things in life.

Toes

And sometimes, you are reminded that life is a bit messy and sometimes “really enjoying life” involves a bit of mess, some clean up and may even require some changes after, but it’s all worth it…….

Messy

These little moments in life pass by so quickly.

Update for Monday January 17, 2011

So we are plowing our way through the second half of the 4th stage of Chemotherapy. This stage is called Delayed Intensification and the first half is a mini repeat of the very first stage of chemo that Angelica went through and the second half is a mini repeat of the 2nd stage of chemotherapy.

These two weeks that we are/have been working on are quite intensive. Angelica gets a Lumbar Puncture with some chemo injected into her spinal fluid on Tuesdays. She also gets another “heavy hitter” chemo med on Tuesday along with yet another chemotherapy medicine that she receives for 4 days in a row, Tues, Wed, Thurs, and Fri. She repeats this schedule for 2 weeks and then the last 2 weeks of this stage involve a weekly shot of a chemo drug called Vincristine and another dose of another chemo drug called PEG-L-asperiginase. The PEG is the one that gets injected intra-muscularly into both thighs….not fun.

If all goes according to plan and schedule, she should be starting the next round on February the 8th.

This current stage that she’s in can be a bit tough. Angelica feels quite icky after her “big” Tuesday of fun and that carries on as the week goes on.

The LP can give her a headache. The Cyclophosphamide can cause a whole host of nasty side effects and the Cytarabine (the one that’s given for 4 days in a row, 3 days off, then another 4 days in a row) builds up in your system the longer you take it.

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My life is “LEGO-RRIFIC”!

We’ve managed to make it almost through the entire first week. Tomorrow starts the second week of this treatment. Every chemo drug has a high point where the drug is at it’s most toxic, that is called the Nadir. The drugs that she’s currently hit their nadir at about 7-10 days. This means that the drugs that she received last Tuesday are starting to hit their high point. Because she’s taking the drugs on back to back weeks, the effects start to build on top of each other. By the end of this week/beginning of next, Angelica’s counts should be very low and may still be heading down for another week.

We would expect that her counts would be very, very, VERY low over the next two weeks.

One side effect of these current meds is that they can cause fevers. And, any fever is an automatic trip to the hospital. Another side effect of these meds is that her counts could go to low and sometimes when your counts are too low…..you can get a neutropenic fever. Again, with the free pass to the hospital…..

Obviously, we don’t want a free pass to the hospital. We don’t want a medically induced fever. We don’t want a neutropenic fever and we definitely don’t want an infection based fever. So we are praying for Angelica to stay healthy over the next couple of weeks.

Her spirits are high, and she’s doing quite well, emotionally. Her friends keep in contact with her and I’m so thankful that she has a couple of AMAZING girlfriends who are such a great encouragement to her. Geli is working hard to stay on top of her school work, most of the time…..she is a teenager and often would rather be playing on her iPod Touch than plowing through Socials homework. But she is doing really well….especially considering that she is in the French Immersion Program.

We are hoping that with the next stage of chemo that she’ll be able to attend a bit of school. She was able to go to school quite a bit the last time she received Methotrexate.

We have managed to stay out of the hospital since November and it’s been amazing. Not that our time has been all lollipops and roses, but it’s been so nice to attempt to have things as “stable” as they could be.

The stress level in the house seems to be a bit lower. Josiah has had probably the most noticeable change over the past 2 months. He is sort of sleeping better. He is not wigging out, as much. One of the nicest aspects…..he is no longer peeing himself 25 times a day. He went from almost potty trained to mostly completely not potty trained and now….he’s doing better than he was before the diagnosis. He has definitely calmed down a lot and I believe it has a lot to do with things being a bit more calm and stable around here. He is 3 and while that brings its own set of challenges, reducing the “crazy” in the house has really helped him to be at peace, which in turn helps us to be more at peace and for that, we are so thankful.

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Siah, just chillin’ in the sunshine….

Jeremy is just Jeremy and we are waiting for him to get some testing done in regards to his unique talents and abilities. His unique-ness allows him to be a bit self-focused and self-absorbed; and while his intensity feeds off the stress or peace in the house, for the most part, he is doing okay.

Xani is struggling. I’m not sure what to do. I’m not even sure how to talk about it all or what to do with it all. We had a good talk on the weekend and I’m hoping that it helps her some. Mentally and emotionally this is all a bit much for her and I think that the stress has caught up with her, physically. She’s been so sick over the past month. It’s just not normal.

We do have all the kids booked into see our family Doctor next week and it will be good to get a check up for all of them.

Jon and I still feel like we are going at a million miles an hour and these 2 weeks of treatment don’t really help with that. Often, the kids will all be put down for the night and we’ll have the opportunity to “spend some time together” and instead, we’ll just go to bed because we are just so tired. Going to bed at 8:30-9pm makes you feel like you are a million years old especially when you wake up the next morning and don’t feel rested. Ah well, it’s only a time, right???

We are slowly making our way through this. It feels like it’s been FOREVER ago that we found out about the diagnosis and it feels like we have FOREVER to go, but we are more than half way through that THAT is awesome!

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What? Do I have something on my face?

One day at a time and we’ll make it through this.

Thank you for standing with us and encouraging us and supporting us. We are so thankful to have you in our lives.

An Almost, Not Quite, Sort Of Normal Day

The baby is upstairs sleeping and seeing as he slept for a grand total of 10 minutes this morning as opposed to the hour he has been doing – I’m really REALLY hoping that he sleeps for a while….I’d love 2 hours to make up for the hour that he missed this morning, but even an hour would be AWESOME.

Josiah is quietly watching a movie while he snacks on his lunch.

Geli has actually gone to school. I was really nervous about that this morning, so I’ve done lots of praying for her. Her counts were just above the border of her being allowed to go to school and it’s so important that she believe that she “BELONGS” at school that we told her she needed to go. She is finally feeling better. The effects of the steroid have mostly worn off and aside from being tired because we’ve recently had a few too many late nights in a row…she’s doing pretty good.

My house is tidy and mostly clean, thanks to the help of an AMAZING woman.

I’m eating the MOST delicious oatmeal cookie and needing to write out a list of things that I absolutely MUST get done this week. That sounds all big and important, but really I need to write out a grocery list and a list of things that I can do to clean the house while holding the baby (in the sling)….ya know things like wiping the window sills or washing the windows, folding laundry….just easy stuff!

Okay back to those DELICIOUS cookies that I was talking about.

I had a craving for Oatmeal Cookies a while ago and while most Oats are “contaminated” (I dislike that word, it’s so “evil” sounding) with wheat, you can buy guaranteed gluten-free oats and so I did.

Oatmeal Cookies

I googled Gluten-Free Oatmeal Cookie Recipes and read through many MANY links and decided to go with this recipe. (If you read my last few posts, I google quite a bit, if you haven’t noticed. It’s how I come up with the “base” of most of my recipes and get patterns and most of my other useless information. HA!)

I used the All Purpose Gluten-Free Flour Mix from Gluten-free Girl and the Chef and then I started altering the recipe to suit me and my tastes. I only used 2 cups of old fashioned rolled oats and added in 1 cup of unsweetened coconut to make up the 3 cups. In place of the 1 cup of raisins, I substituted 1/2 a cup of cranberries and 1/2 a cup of these chocolate chips. I used Earth Balance Soy free Spread instead of the butter. I did use an egg because I put cranberries in them and that means and NO CHILD in my house will eat these because they have “raisin type food” in them. It was so very clever of me. I made the MOST DELICIOUS COOKIES and they are mine…..ALL MINE!

If my diet weren’t strict enough, I think that I’ve figured out which foods are bothering Judah and I believe……hopefully…..that he is now, actually, on a forward moving, positive trend. We’ve eliminated Gluten, Dairy and Soy….which basically leaves me with nothing left to eat. Okay, so that’s not true at all, but some days it feels like that and so I’ve consoled myself by having little treats like this around the house. I could totally make these cookies dairy, gluten, soy and egg free just by using Ener-G Egg Replacer, but for this batch, it wasn’t necessary – thanks to those pesky little cranberries. But, it’s worth giving up all those foods for my child’s health and if I’m being completely honest….I feel way better eating like this too. The soy is a bit difficult because I use it as flavor in my cooking and I LOVE miso soup, but I don’t believe that it will be gone forever….just until Judah is a bit healthier and his guts become a bit stronger.

Anyway, I made these one evening after the kids had all gone to bed and as soon as they came out of the oven, I tasted one and YUM!!!!! Then I sat down at the kitchen table and ate WAY TOO MANY. I dunked the warm cookies into a cold glass of Almond Milk! These are amazing and I’d serve these to anyone and they’d have no clue they were so altered.

These are not cookie substitutes….these are cookies…real, honest to goodness, chewy and crispy, delicious cookies.

If you have some food “issues”, these could be your next favorite cookie (if you like oatmeal cookies, that is) and if you don’t like raisins or cranberries…just increase the chocolate chips or the oatmeal or the coconut by half a cup.

Alright, I’m off to make my lists….

Siah’s Gifts for the Babies

Josiah received a bit of help with his gifts…

Well, honestly, I wanted to be able to give these to the babies and Jon and I worked on them together and in an effort to make things as easy as possible – we gave them to Siah to give to the babies.

He helped to play with them before hand and also to wrap them up and well……that counts doesn’t it?

This year, it counts! It just does.

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I bought a wooden teething toy for Josiah when he was a baby. I loved that it was all natural. These are made from Maple and are finished with Flaxseed Oil.

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There are tons of these wooden teethers available for purchase on the internet and I wondered if we would be able to re-create some for ourselves.

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We purchased a piece of hardwood and decided which designs that we wanted to create and Jon started cutting.

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I love this hippo. I think he’s absolutely adorable. I have been trying to come up with an elephant design as I LOVE elephants and I’d love to be able to design the cutest elephant. I just don’t want it to have too many small pointy or sharp(ish) edges.

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I also love these guitar’s.

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Which design is your favorite? They were so much fun to make and I will definitely be giving these out as gifts in the future.

I love that the babies get a kick out of sucking and chewing on these, but a bonus surprise has been that Xandra and her cousins have enjoyed playing with the camera & keys; and that Josiah has loved playing with these also. I love the fact that they are using their imaginations to play with these. I also love that they are being used my children from infancy through to 12 years old. I’m wanting to make more wooden toys to encourage them in creative and imaginative play.

This gift was a lot of fun to create and even more fun to give.

Christmas is Coming & other updates…

Well, the baby is playing on the floor, the boys are watching Despicable Me; and the girls (and Jon) are in town to get Geli’s third dose of chemo for this round.

We went and got her blood work done yesterday and her numbers are quite low. Not “freaky scary hole up in the house for a week or two” low, but “avoid mostly everyone and stick to just family members” low. We should hit the “wrap her in Purell coated bubble wrap” low by New Years Day; and really, we are praying to avoid any trips to Children’s between today and January 11th…which is the next scheduled chemo dose. If you are the praying type, we’ve love some prayer that she (and we) stay healthy and protected between now and then. We are really looking forward to some nice quiet, calm peaceful days and nights between now and then.

When Angelica went for her 2nd dose of chemo last Thursday her white blood count was on the extreme high end of normal. This was a bit unnerving for us as the last time they were anywhere close to high was when we found out that she had Leukemia, BUT….this time, it was only an indicator that she had a virus and that she was fighting it off. This was FABULOUS news because her body is trying so hard to do what it was created to do and in the middle of all of this assault of her body – that is wonderful.

She successfully fought off that virus (after it tried quite ridiculously hard to kick her butt – she did have a rough couple of days and we weren’t sure if it was the chemo or the virus or both) and only has the slightest bit of a cough right now. The rest of us are steadily taking our vitamins, avoiding the throngs of people out there and trying to do everything that we can to boost our immune systems so that we don’t get anything, and so far it seems to be working.

With everyday that passes uneventfully, I can feel my family starting to breath a bit deeper, starting to relax, starting to act less strung out and this is such a good thing. Josiah is starting to go to bed more calmly (he was screaming hysterically for more than half an hour at bedtime regardless of what we did to encourage, console or help him to sleep) and he’s actually been sleeping through the nights (as opposed to waking every hour or 2). The not sleeping was just making EVERYTHING worse and so to have that not be as HUGE of an issue is so nice.

We are hopefully working through the issues with Judah. <>

We’ve not seen a lot of blood in his poop recently and so we are hoping that things for him are on the upswing. We’ve gone from 15+ bloody diarrhea diapers in a day to about 4 or 5 more normal-ish looking jobs. He’s throwing up WAY less and seems less like he’s in pain and is waking less in the night.

It might take some time for his intestinal tract to heal but I believe that he’s on the mend. I still feel quite a bit of stress about him, but it’s less now that he seems to be getting better as opposed to getting worse.

I feel like we are definitely headed in a more relaxed, peaceful direction, and yet I feel a bit like I’m holding my breath. I would desperately love for things to carry on as they are and for nothing to upset this delicate balance that we’ve got going on. It’s a reality that I have to be prepared for that Angelica could end up in the hospital between now and the New Year. It’s not a certainty, nor is it even “likely” but I cannot ignorantly walk around with my head in the clouds thinking that nothing like that could possibly happen to our family. For who I am, I need to at least be a little bit “prepared” that it might happen and then I can be ever so pleasantly delighted when it does not happen (positive speaking, right?). Having that thought in the back of my head, does bring it’s own level of stress and I hate that. I hate that I feel like an elastic that is wound too tight, but as long as I can hold steady everything is okay. If there is one more twist, then I might snap.

I don’t actually believe that I’ll snap, but to have things go chaotic again seems like it would very much upset this fragile balancing act that I’ve got going on. I do feel a bit more grounded with every day that passes, but I still feel like I’m trying to get back to a position of strength, not like I’m working or operating from that position of strength.

Being that kind of person that I am……it sucks to be in this place.

Other than my stress level – things are carrying on as usual. We are almost ready for Christmas. Siah is SO excited. I forgot how much fun it is to have a 3 year old for Christmas. I think 3 is the perfect age. He can’t wait for Christmas to come and his Holiday Cheer is so infectious.

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We are doing well, over all, and I am so thankful that we are all together as a family this Christmas and that Geli’s prognosis is so good. We are looking forward to 2011 being an amazing year.

MMMmmmmmm

Things have been busy over here in so many different areas.

I keep thinking that I’ll have a moment to update what going on and instead I’ve ended up with a backlog of things to write about and new things just keep on happening. That’s life isn’t it? It just keeps moving forward at a steady, predictable rate; even if you desperately want it to slow down and especially if you want it to speed up.

Homemade Oreo Cookies

In case things weren’t already crazy enough, I’ve recently needed to remove gluten from my diet. I mentioned a while ago that Judah was having some gastro-intestinal issues. Removing dairy seemed to help a little and yet it really didn’t help like I thought it would. When I went to the doctor, it seems that his issues are dairy, gluten and yeast related and we are trying to figure out if this is a short term deal or a much more serious situation.

It’s been just over a week since I removed the gluten and while things are not great, they do seem to be a little bit better. Judah seems to be in less pain and that’s a huge deal for me.

I found this recipe for gluten-free Oreo cookies and figured that I’d attempt to alter it to make it dairy-free and egg-free. I baked up a batch tonight and it’s amazing.

Jon figures that they are good enough that you’d never know that they were dairy, egg and gluten-free. They are sooooo yummy and I know the kids are going to flip when they wake up in the morning.

Angelica is starting the 4th stage of the chemotherapy tomorrow morning. She went and got blood work done this morning and when her counts came back this afternoon….they were FABULOUS!

We were hoping that they would be high for the start of this round and they are, especially compared to how low they were last week. They are low for normal, but high for Geli.

Xani has been quite sick over the past week. It was almost like the flu but with no barfing or fever…….she’s had a headache, sore muscles, an all over achy feeling, runny nose, cough, and I think that she’s finally, slowly, on the mend.

Jeremy turned 10 years old yesterday and I’ve got a bunch of stuff to update on him.

Siah has not been sleeping very well and as a result, he’s been a bit of a goofball during the day. Lots of tears and whining and fussing and moaning and screaming….it’s a bit wearing. And I’d love to say that I have some great ideas and plans of what to do with him to work through this rough patch, but….ya…..nope! Nothing! I’m not sure if I’m too tired to come up with something or maybe I need to be just a little bit tired before “it” comes to me. I dunno, but I’m sure we’ll figure something out or maybe he’ll grow out of it all before I have to come up with something.

Christmas is coming and I’ve been baking (gluten-free, of course) and we’re trying to get things ready so that things will be peaceful and calm. I can at least hope for peace and calm, right?

I’m hoping to find a few moments to be able to get a few things caught up on here (and in real life). Should we take bets on whether it will actually happen or not????

Ah well. Life keeps moving along and I keep on moving with it, whether I like it or not.

It’s all about the Chocolate, Baby!

Living with food allergies can be difficult at times but it’s not the end of the world. Yes, there are definite challenges, but we manage work within the limitations and still live and eat amazingly.

Any effort that we have to go through is SO worth the vibrant health that we get to experience….ya know, minus that whole cancer thing….ummmmm, yah moving on….

Siah has an egg and dairy allergy and to look at him, you would never know that he has allergies. He doesn’t have dark circles and bags under his eyes or eczema on his skin. He is almost never sick and never seems to have “bowel issues”…trying to be subtle here. He is one healthy little boy.

In this picture, if you look, you can see all the little scratch marks on his face. He would claw himself all day and all night because his skin was bothering him so bad….I had already eliminated dairy from my diet at this point

Making a Funny face when talked to.

In this picture, you can see some of the eczema on his face. I remember when I saw this picture I was so excited, because he looked SO AMAZING. He was starting to heal at this point. At it’s worst, he was an oozing mess all over the top of his head, down his forehead, into his eyes and all over his cheeks and chin. It was horrible.

'Siah and Me

The rest of us, don’t eat dairy because it does not agree with us. It’s not an allergy like Siah, but more of an intolerance. When he eats dairy, he gets sick with vomiting and diarrhea and has eczema and it’s nasty. The rest of us might get bloated, or have tummy aches, headaches, or might just feel “off” or “icky” and most of the time, it’s just not worth it, especially when there are so many amazing tasting substitutes.

One thing that I’ve tried to do ever since we found out about Siah’s allergies is to make life as normal as possible. We eat ice cream, and pizza and have chocolate and pretty much anything that we want to eat…..we eat. I’ve just found dairy and egg free substitutes.

Special days like Valentines and Easter and Christmas can be difficult, but I’ve tried very hard to not have my kids feel like they’ve been denied “normal” while keeping things safe for everyone.

With the Christmas season comes Chocolate Advent Calendar’s and in past years, I’ve done many different things, from creating envelopes with different “things” to do or eat. I’ve put Jelly Beans into an Advent Calendar and that’s worked, but the best thing that I’ve done is to just “alter” the advent calendar’s so that they are dairy free.

First thing to do…..Get your Calendar and slice open the flap at the back, trying not to destroy the flap because you’ll want to seal it up again when you’re all done.

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You’ll need to open it carefully and pull out that tray that’s inside. It might be glued to the cardboard and so you’ll have to carefully pull it apart and away from the box in order to get it out.

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Then you’ll need to dump out all the original chocolates, and dispose of the original’s….I had 2 big girls that were willing to deal with a bit of an upset tummy to be able to eat the chocolates.

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Then you need to get yourself a dairy-free chocolate bar. This particular one is from Super store. You can find dark chocolate that has no dairy in it if you search and read a million labels. This one is great because it doesn’t taste too dark and bitter and *the bonus in my eyes* it has almonds in it. YUM!

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Break it into hunks and melt it down. I used about half the bar and melted it in the microwave for about a minute and a half.

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I used a spoon to drop the melted chocolate into the plastic try.

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You take your completed tray and pop it in the freezer to set the chocolate. It only takes a few minutes to set it enough to continue on with this whole ordeal.

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While you are waiting, you could clean up the dishes that you’ve used, or just use the time to finish up any of the leftover chocolate…..MMMMMMM Chocolate!

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After a few minutes, the chocolate is set enough to carry on. I pulled out my glue gun and heated it up and glued a few strips on the tray…..this will help the tray to stick to the box and then all the chocolates won’t fall out or slide all over the place.

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You have to work quite quickly here because you want to get the tray back into the box before the glue cools and hardens….so slide it back into the box and you’ve got to make sure that it’s facing the right direction….one way it lines up with all the little doors and the other way it doesn’t….I’ve learned the hard way. Not fun!

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You can just press on it gently to make sure that the glue is stuck to the box…

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This picture has nothing to do with anything….I just think he’s very cute and he was sitting watching me with this “What the heck are you doing?” look……

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Flip the box over and run a strip of glue along the back flap

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and then seal that sucker up…..My 2 big girl helpers managed to shred the top of this flap and so it required a little extra lovin’ to get it sealed up properly.

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Here are the calendar’s waiting for the kids to open them.

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Opening the special Dairy-Free Christmas Calendar that is totally safe for him……

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Everybody is excited about chocolate….

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These two have almost the same hair-do…

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I think he approves….

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These pictures would be so much cuter if he didn’t have that giant booger in his nostril…Oh Well…just keeping it real. I wonder if I coulda photo-shopped that sucker outta there….yah probably, oh well…..

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Definately a happy boy with his “daiwy-fwee chawclut”…….

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Even the older ones still get excited about their chocolate calendar’s….

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I love having my kids be able to participate safely in some of the treats and special things in life, and any extra effort that it might take to make this happen is SO worth it, to me.

Start of Another Week

Time just keeps moving forward and I find myself frustrated at all the things that I want to do that I never accomplish.

I’m doing lots, but I still feel like I’m running from behind trying to catch up. I “HATE” that feeling of not ever getting things done, but it seems to be the “norm” around here these days.

A little while ago, (I’d guess at a week ago, but I think it was even further ago than that) Geli’s friend came over to hang out and her Mom had picked up both the girls from school and dropped them off at our house.

When she came, she brought the MOST delicious Vegan Fudge Brownies….

I wish I had gotten a picture of them, but they were so good that we pretty much devoured them before I even thought to snap a photo of them and then I was just to lazy and tired to snap a picture of the remaining few pieces after we had all gorged ourselves on the delicious treat.

Siah was particularly thrilled and kept coming back asking for more and more and more.

The next morning we woke up and came downstairs and this was the sight that greeted us…

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He had come downstairs first thing in the morning and found the tinfoil that had been covering the brownies…

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It was SOOOOO delicious that he had to scrape every last lick from the tin foil…..

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Such a silly little boy, but it really was very delicious and we were so thankful to have been blessed like that.

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Siah Safe

Anyone who knows me, knows that I love to cook and bake. Often it’s a challenge to work with Siah’s Allergies and “the way we eat” and come up with food that looks and tastes as delicious as “regular, normal” food. It’s regular and normal for us, but I’d like to be able to serve it to you and have you not notice the difference. I also don’t want to always have to give Siah something different from the rest of us. It’s important to me that he understands that he needs to be careful when he goes out, but that here in our home, he never has to worry or feel “different” or “strange”. It’s a challenge that I’m usually up to, but in the past few months, I’ve not done a ton of baking and I’ve mostly stuck to our regular go-to meals.

But recently, I’ve been thinking about Chicken Lasagna.

My Aunty Lori makes an amazing Chicken Lasagna. Although I’ve never had “her” Chicken Lasagna, my dad had “her” lasagna (when visiting them in the Great White North – they live in the boonies.) and loved it so much that he asked her for the recipe. He’s made it a few times and MMMMmmmmmm – YUMMY! It’s a Tomatoe based Lasagna.

I asked for the recipe a bit ago and my mom even printed it off for me, but the paper got wet and then Siah destroyed it…so I still need to get it, because it’s one of Geli’s favorites and apparently, I “wreck” my lasagnas because I put too many veggies into them.

I’ve also tried a few times to make a White Cheese Sauce based Chicken Lasagna, but according to my kids…..I’ve had some “interesting” but not horrible results and yet nothing that was FABULOUS – until yesterday…….

Hungry

I made a lasagna yesterday “based” on this recipe….with substitutions and additions, of course.

With the dietary restrictions and lifestyle choices that we have/have made, I pretty much “always” alter recipes and mostly, I have pretty great results. In this recipe, I use brown rice lasagna noodles, vegan Becel for the butter, Spelt Flour, Soy Milk, Goat Mozzarella, a hard Sheep Cheese for the Parmesan, Cheuvre for the Ricotta, and just because I know my kids preferences, I used carrots and zucchini instead of spinach. It was sooo YUMMY!

Cheesy Chicken Lasagna

I love it when I find a “traditional meal” that I can alter to fit in with the allergies and intolerances within our family. In fact, It was yummy enough that I bet I could have fed it to you and you’d have never known it was “different” or “altered”.

You can’t very well have a delicious meal like that without dessert, can you?

Well, we don’t hardly EVER have dessert, but we do like snacks. This past week, a wonderful lady brought us a meal and included with the meal were the most amazing double Chocolate Chip Cookies. Like a pig, I devoured We finished what was brought, and then they were so delicious that I we wanted more.

I’m not sure if the cookies we were given were dairy and egg free, BUT…..no worries because they never lasted long enough for Siah to know that they were even in the house I found a recipe and made some unbelievably delicious Double Chocolate Chip Cookies that even Siah can eat.

Again, with the substitutes….I used Spelt Flour, Vegan Becel, Ener-G Egg Replacer, and President’s Choice Semi-Sweet Chocolate Chipits (these chipits have no dairy. MMMmmm). These are AMAZING!

Double Chocolate Cookies

There is no way that these could be considered “healthy”, but at the very least, they won’t upset our tummies, and Siah can eat them without us worrying about his allergies.

2 Stitches

As if we didn’t have enough drama in our lives right now, Siah decided to shake things up a little last night.

Jon, Jeremy and Siah were down in the basement playing a video game. Siah was sitting on the arm rest of our futon and he unbalanced himself and fell forward hitting his head on the corner of a wooden toy box.

Breakfast

Breakfast

Mom, the girls, Judah and I were up in the kitchen and heard the thunk. It was that loud. Then we heard Jon yell and then we heard Siah crying and it was “one of those cries.”

I raced downstairs and met Jon at the bottom of the stairs. He handed Siah off to me and there was blood everywhere. I could see that his head was split open in between his eyes. We came up stairs and got a rag to try to stop the blood. It was apparent that he’s need stitches.

First Bite

First Bite

We hoped that we could make it to the local clinic that did Jeremy’s stitches as we’ve talked with them about our challenges of dealing with germs and sickness due to Angelica’s suppressed immune system, BUT….it was 7:30pm and they were closed at 8pm and they were already over booked for the day and were not even answering their phone.

And so Jon headed to the ER.

The plan was for Jon to wear a mask into the ER and explain the situation and see how they could work with us to get Siah the care that he needed while attempting to keep us as germ free as possible.

The staff at Langley Hospital were amazing.

Deliciousness

Geli’s Delicious Cinnamon Buns

They didn’t have any open rooms at the time, but they planned to get a room emptied and clean out and to bring Jon and Siah in and straight back to the closed room as soon as possible. They gave Jon a small mask for Siah to wear in and out and in the waiting time, they stayed in the van to minimize the possibility of picking anything up from other ill people.

They waited in the van and the triage nurse came out to the van to assess Siah and yup….he needed stitches.

It took a few hours, and in the mean time, Siah fell asleep.

See Food

See Food

When the room was finally ready, Jon carried the sleeping Siah in. He said that they got quite a few looks, as he’d been in and out with his mask on and now they were carrying a limp child in with a mask on….can you imagine that others in the waiting room must have been wondering what was wrong with this child that they had to wear masks????

Jon tried to wake Siah up to explain what was about to happen, but he had tired himself out so badly with his initial screaming when it happened that he was NOT waking up. He was in that drowsy state where you’re not really awake but not really asleep. They finally wrapped him like a burrito to keep him from being able to move his arms and the Dr checked to see that Jon was okay with what was going to happen and once he was sure that Jon wasn’t going to flip out….they started.

They had already put on a fast acting numbing cream and they started injecting the freezing and that’s when Siah woke up for real. So in his mind, probably, he went to sleep and was woken up to some dude poking his head with a needle. AWESOME! Jon said he screamed until he wasn’t breathing. Brutal! The Doctor only put in two stitches because he figured that was about all that Siah could handle and even though he was being quick, it was still pretty traumatic.

He told Jon that the cut was extremely straight and that it should heal amazingly because it was such a precise cut.

2 Stitches

2 Stitches

They masked up again and came home. Siah settled down pretty quickly once Jon was able to hold him and was almost asleep by the time they reached the van.

They got home before 11pm….not bad considering the waits in ER’s now a days.

He went to bed right away and slept through until 6am when he crawled into bed with us.

This morning he seems to be doing okay and so we are just gonna take it easy today. Geli’s doing pretty good this morning too. We were attempting to adjust her meds schedule around so that we were not having to wake up at 3am to give her a dose, but that meant that she might be a little barfy this morning. She did feel a bit off and dry heaved for about 45 minutes off and on until the meds finally kicked in. Her and Siah are back downstairs in the basement this morning. She is teaching Josiah how to play the original NES Nintendo Super Mario Brother’s game. He’s thrilled and she’s distracted and it’s good.

This is now the 4th of our 5 kids that have gotten stitches in their head…..when she was about 8 years old, Geli wacked her head open on a floor heater and needed 3 stitches. When Xani was about 10, her cousin went all vmapire on her and tried to take a bite out her head while they were jumping on a trampoline and she needed 3 stitches. A few weeks ago, Jeremy got 3 stitches in his chin and now Josiah has had 2 stitches in between his eyes…..GAH!

I’m really hoping and praying that Judah stays safe and protected.

Do you have any cool stories about “that time you got stitches” or your kids……Please share!