Family – Page 11 – xangelle.com

Here and There (continued)

Well, I managed to update once yesterday and then it was time for the kids to come home from school and things just went downhill from there.

I forgot to give Jeremy his medicine yesterday and I can’t fathom why his teacher didn’t have him call home. If his behaviour after school was consistent with his behaviour during the day…..all I can say is, “WOW!”

2:59pm Xandra came home from school. My dad dropped her off but Jeremy stayed behind for “Robotics Camp”. Judah was SO excited to see her. He is always so glad to see the kids when they come home.

3:03pm We took this picture to send to Jon, just for Xandra to say, “I love you, Dad!”

3:45pm I find it so hard to believe that we generate THIS MUCH GARBAGE…..I sweep on average, 2-3 times a day and always manage to sweep up a decent mess. Man! Makes we feel like we’re pigs or something……

3:47pm Xandra worked on her homework! She is trying to catch up on a bunch of stuff that she fell behind on over Christmas and in January. She has one more project to hand in and then she’s done…..and then we’ll all breathe a sigh of relief. I’m sick of ragging on her to do her homework!

4:08pm I left Xandra and the computer to babysit and ran up to the school to pick Jeremy up from Robot Camp…..Josiah has watched more movies in the past 7 months than he has in his entire life. At this point, I’m just trying to survive….

4:12pm I had exactly 2 minutes of complete silence before I went in to pick up Jeremy!

4:16pm My Sweet Boy – He LOVES the Robotics Camp and we are so glad that he has found a hobby that he excels at.

4:24pm I managed to throw through a couple of loads of laundry today. Didn’t get them put away, but washed, dried and folded is at least 3/4 of the way through the process…

4:27pm On the other side of the world……here is the wall that is directly across from Geli’s bed…It’s all of us who can’t be with her….cheering her on, if only in picture! You’re never alone, Geli! Never alone!

4:28pm An amazing guy we know dropped off this mini fridge so that Jon and Geli could put decent food in it. The main fridge in the kitchen is always crowded and overflowing and so this is a HUGE blessing! Thanks, Reg! You Rock!

4:48pm Jon sent this picture through of Geli’s room all decorated for Valentines Day! I believe that she and her cousins made these???? Pretty, eh?

5:14pm What is it with 5 o’clock, anyway??? This was the start of many, MANY meltdowns in our family last night.

5:18pm Meanwhile, Jon and geli decided to go for a walk. They went to the Safeway just down the block from BC Children’s Hospital and also to the Dollar Store where they found this sweet pink hat with flames and the name “Angel” on it. They also picked up some socks! You never seen to have enough of something when you are at the hospital…sometimes its underwear, sometimes socks or shirts….something always gets missed in the packing. Unfortunately, we live too far away to just pop over to drop something off and usually they have to determine whether they can wait until we come in next or just go ahead and pick something up.

5:31pm We had soup for dinner, AGAIN! I’m trying to figure out how I can convince the kids to have it one more night. Maybe we’ll do cereal to shake things up a little. We’re living large over here, I tell ya….LIVING LARGE!

5:48pm While we finished up dinner, Jon and Geli walked “home” in the beautiful Vancouver dusk.

6:05pm We had some ice cream for dessert. These are little gluten free Oatmeal cookies with Chocolate Coconut Ice Cream in the middle for a delicious Ice Cream Sandwich!

6:15pm And I’m counting down the minutes until I can put the kids to bed. Don’t want it to be too early because then they get up too early and so I need something to waste some time…..

6:43pm A bath usually takes up a good chunk of time and it’s hard to be miserable when you’re in the bath.

6:44pm Siah’s faces are priceless!

6:56pm Jon and Geli made spaghetti dinner and said it was delicious…they even had seconds!

At this point, I was trying to get boys into bed and things were a little intense. By 8 o’clock, Siah was asleep, Jeremy had woken up Judah, Judah was crying, Jeremy was crying and then I started crying. Between Judah feeling sick with this plague that has swept through our family and cutting teeth, I’ve had less then 4 hours of sleep a night for the last week and those 4 hours……have been in less than 1 hour chunks. Apparently, I can sort of hold myself together for a week with next to no sleep and then…….and then I cannot hold myself together any more.

The house was a complete mess, the cleaners were coming the next day and nothing was picked up for them, the baby was still awake, Jeremy was crying himself to sleep and I was crying and messaging with Jon on my phone.

8:13pm It was a pretty sad moment. I sat on the edge of my bed and rocked and rocked and rocked this little one while messaging with Jon and my momma.

8:27pm And then he slept and then I crawled into bed and began what was to be another LOOOOOOONNGGGG night!

I have an appointment tomorrow morning with our family doctor to get Judah checked out. Xandra, Josiah, and my Momma are starting to do better after a week of whatever this plague is and I’m pretty sure that Judah will be okay as well, but he is wheezing quite a bit and while that’s probably just because his airways are so much smaller, I want to have him checked out before the weekend.

Here and There

Well, while my family is split up for the next little bit, we decided to send each other pictures of what we are doing so we feel a little less separated and a little more involved.

Here’s what Geli and Jon are doing at 9:46am. They made Eggs & Toast and are eating them in the Kitchen on 2B….We are so thankful that they are on 2B (the 2nd floor of the oncology ward) with access to a kitchen so that they can eat good food and not be stuck with the hospital food. While the hospital food is not “HORRIBLE”, it’s not “DELICIOUS” either.

Here at home, we had sent the kids off to school and were thinking about putting the baby down for a nap. But instead, we took a picture on the stairs.

This was my view at 11:41am…..I’m working on this post, Siah’s watching a movie and Judah’s just chillin’ and eating some steamed taro root cubes.

11:49am and Jon& Geli are up on 3B (the main Oncology ward) and are playing a little air hockey. Jon is WHOOPING Geli’s butt!

They’ve discontinued one of Geli’s Antibiotics. She was on two different ones and now she is only on the broad spectrum one. The cultures that they’ve been doing have all been negative since the 4th day in. Now we are just waiting out this round of antibiotics before she can come home. Aside from feeling a bit “off” first thing in the morning, she’s feeling fabulous. Her counts are still really low. For example, the number that indicates the amount of infection fighting “soldiers” needs to be over .5 for her to even consider going to school….as of this morning, that number was at a .08….so she really has almost no ability to fight anything off right now. We are praying for her numbers to come up quickly. She can’t even start her next round of chemo until that number is at a .75…..we got a ways to go before she hits that.

12:50pm Sometimes, this whole toilet training business is harder than it seems…. He called me to help him and this is how I found him…

1:13pm Judah’s playing with the Shadows on the floor. It’s so nice to see the sun out.

1:18pm Aunty Chelle and the Cousins visit. It’s so nice that they can visit when we can’t…..

1:47pm Geli and Brianna playing a game……

2:17pm This is what over tired, a sore throat and teething looks like….

2:31pm Sleep…..Sweet Sleep!

2:47pm Playing Air Hockey with Baby Zach (with a little help from Aunty Chelle)

I’ll be updating this post with the rest of today’s pics as they happen……

Oh, and if you haven’t yet, would you go here and help me out? Huge thanks to all those who’ve already left your suggestions, I love hearing what you all have to say!

Sunday Night Ramblings brought to you by our iPhone(s)

Well, it’s Sunday night at 7:45pm and I’m looking at a ton of random photos from both mine and Jon’s phone…… These pictures sort of highlight the past few days of our family, both here at home and at the hospital.

Seeing as I’ve managed to get the 3 kids that I have at home down, I thought I might try to throw them up into a post along with some of my random “brain thingys……”

This was Jon’s chair bed……..and then he got upgraded to a cot, but it was horrid…all lumpy and wires and bars sticking up and out and totally uncomfortable…..

This is actually the lumpy nasty bed………..

He then took a few test rides on some of the cots in the empty rooms on the floor that Geli is on and ended up with a deluxe bed…….that pretty much looks exactly the same as the picture above. In fact, you’d never be able to tell the difference. And this is where you all start with the “Princess and the Pea” jokes for him right about now…….Ha Ha HA!

It’s amazing how the dynamic in the house changes when you add or subtract people and right now, we are 3 people short over here and Xandra and Jeremy actually “played nicely” on Saturday morning. Here is the Lego maze that they created. It was supposed to be a game board…..Not sure if they actually played a game or not?

We went for a walk on Saturday afternoon. Like I mentioned earlier, Siah’s been staying at my mom’s because he’s been a coughing, snotting, germy mess…..He’s missing us and I’m missing him dearly and so my mom suggested that we go for a walk and hopefully with all the fresh air, we wouldn’t pass the germs around.

What??????? Don’t you take your Lego robots for walks with you?

While we were playing and walking and doing a bunch of other boring stuff, Jon and Angelica slept in FOREVER and then they had some DELICIOUS hospital breakfast…….

Later, they got in a little exercise……you can see that she’s really going fast…look at the blur that should be her legs…

After a little clean up (cause riding a bike can be sweaty, sweaty work) they headed down to the kitchen to play some Monopoly. Geli must not be feeling a hundred percent because Jon KICKED HER BUTT! Like really, REALLY badly, and she ALWAYS wins! So Weird!

Meanwhile, we walked and walked and walked and walked…..you know, the whole theory that if you tire the kids out, then maybe they’ll sleep really good….ya doesn’t always work for my kids. SUCKS! Along the way, my strange kids were kinda creeped out by these Alien Pods – but I have no idea where they got that idea from….none at all!

But, we finally made it to the park….

The kids played and climbed and went on the swings and up and down the slides and onto the monkey bars and we only had to yell at them to avoid all the other children a half a dozen times…..by that point, the parents were just high tailin’ it outta there anyway…… (okay, all of that was totally made up…..There were ONLY 4 other pre-teen boys “hanging out” there and they only had the rescue Siah “once” from climbing up the tallest part of the tallest play structure…That child is seriously part goat and the other part is monkey….he’s amazing!)

We managed to deal with Little Master Siah McSnotterson. This way, you only have to deal with the snot once as opposed to blowing his nose a million times, and it totally saves the jacket from needing a wash too. Come on! You parents know what I’m talking about….if there isn’t a kleenex around the slug slime goes from one wrist up to the shoulder on both sides. BLECH! I’m shuddering just thinking about it.

Judah had fallen asleep while we were there, and it was so nice to just sit on the park bench and to not have to “do” anything. After we had been there a while, I loving asked Josiah, in the softest most gentle voice that I own to not do something that he was doing…..and Judah woke up. You’d think that it would take something more like a yell or scream to wake that kid up……you might be right? At least he wakes up happy, eh?

As we walked home, the kids all needed to express their inner Jackie Chan by doing “maneuvers” on the fence…This is Jeremy’s best shot of the “Despicably Crouching Tiger” Amazing, isn’t it? Such skill and finesse!

Xandra dropped a mean “Flowering Stork” on us…..

I tried to ask Siah which maneuver he was pulling off and the best I can gather from what he was mumbling behind those trailing kleenex’s was that he was really working on the “Dangling Walrus”. It’s a two person move as you can tell by the picture and my mom very graciously offered to stand in for him.

These pictures are really just bonus pictures just because I love them and they make me smile……..

This is a picture from before Geli and Jon went into the hospital, but I’m putting on here anyway. I love that its blurry cause he’s moving so fast, but you can see his two little front teeth sticking out and the nerdly glasses combined with the swooshy hair….this picture is priceless to me!

This picture CRACKS me up. The look on Geli’s face is amazing. You can almost hear her saying, “Huuuuuh?”

And in this one it looks like Judah’s trying to figure out who is ‘in” the phone.

Well, I ate a million gluten free oatmeal cookies with a cup of almond milk and called it dinner….I figure it’s exactly the same as porridge, right? Well if that’s the case, why do I feel SO GROSS! Yuck! Time for a millions cups of water and possibly an early-ish bedtime…..if I’m smart!

And with that…..I’m off! Hope you’re weekend was a good one! Care to share what the highlight of your weekend was?

Update for Tuesday January 25th

Today is a busy day over here.

Jon and Geli left at 7:15 to go into Vancouver for some more chemotherapy. They were hoping to get in and get started on what is supposed to be a VERY LONG DAY and the traffic has been so bad that even now at 9am…they are still not there. They are close, but not there yet.

Their day will most likely look like this.

Show up, get accessed (the IV into her VAD), get blood drawn, wait 30mins to an hour for blood test results, then most likely get a platelet transfusion, and quite possibly a red blood transfusion, then a dose of chemo via IV and then another dose of chemo shot directly into her thigh muscles, then they have to wait an additional 3 hours to make sure that she has no reaction to the intramuscular shot and then they get to head home. They should arrive home any where from 6pm-8pm tonight.

That’s a whole 12 hour day……YUCK!

Out here, we are headed into 2 appointments for Judah to see how things are going for him. He seems to be doing okay and I’m really hoping for some great and amazing news from his appointments today.

Angelica is doing pretty good. She is still having some nasty headaches, although on the pain scale they’ve gone down from a solid 8 out of 10 to a 3 out of 10 and while that seems like a fabulous drop in pain to have had constant headaches for over a week….even a mild headache is annoying. I think that the constant pain is wearing. She had a pretty down day on Sunday and that seems to be when she bottomed out and things have headed up from there. She’s pretty tired and today’s blood test will give us more answers as to why.

We’ve been giving Xani something to help her sleep and it’s amazing the difference when she gets a little bit of sleep, but we still need to deal with “WHY” she’s not sleeping and some of the emotional crap that she’s not processing very well. We have been in contact with one of the psychologists at BC Childrens and I’m going to go in and talk with her next week and then we’ll take Xani in.

Other than that things are going okay and we are just trudging along taking things day by day.

Cousins (picture heavy)

My sister dropped Jack off a our house the other day. He’s such a sweet little boy with such a cute little disposition. He’s so darling.

Of course I got out my camera, because he just “needed” to have some pictures taken. Look at this cute little face…..

Then I sat the two cousins together to try and get a picture of them…but Jack wasn’t having any of it. He super quickly crawled away. He’s pretty quick and we’re hoping that he’ll give Judah a few tips or pointers on crawling – the proper way! But If you look at Judah’s face, he doesn’t really look that impressed, does he? He looks like he’s saying, “Show off!”

I figured that I’d take the opportunity to take a picture of Judah sitting, cause I had mentioned that I wanted to get a picture of him sitting to show you all. He’s sitting…..I can’t believe how fast the time is flying. Next thing I know, he’ll be in Kindergarten and then off to college. OH MAN!

Well, not to be outdone….Jack had to show us all that he was almost ready to stand. “See me balancing! All I have to do is push up, and VOILA! I’m standing!”

“Not only that…..Here’s my Blue Steel! You can’t do that one, Judah, can you? Just try to top that!!!”

The boys were headed right into a smackdown and so I distracted them with some food….

Hey Jack, man! You dropped some of those potato puffs on your shirt! It’s a bit embarrassing looking, but mostly I just wanna know if you’re gonna eat that. I’ll help ya out, if you’re not???

Hey! Lady, where did those treats go? We’re still hungry, eh?

Hey Judah! Slow down, don’t cram those in so fast! I wanted some!

Hey Lady! Are you still taking pictures of us? Haven’t you got enough already? Geesh!

Update for Monday January 17, 2011

So we are plowing our way through the second half of the 4th stage of Chemotherapy. This stage is called Delayed Intensification and the first half is a mini repeat of the very first stage of chemo that Angelica went through and the second half is a mini repeat of the 2nd stage of chemotherapy.

These two weeks that we are/have been working on are quite intensive. Angelica gets a Lumbar Puncture with some chemo injected into her spinal fluid on Tuesdays. She also gets another “heavy hitter” chemo med on Tuesday along with yet another chemotherapy medicine that she receives for 4 days in a row, Tues, Wed, Thurs, and Fri. She repeats this schedule for 2 weeks and then the last 2 weeks of this stage involve a weekly shot of a chemo drug called Vincristine and another dose of another chemo drug called PEG-L-asperiginase. The PEG is the one that gets injected intra-muscularly into both thighs….not fun.

If all goes according to plan and schedule, she should be starting the next round on February the 8th.

This current stage that she’s in can be a bit tough. Angelica feels quite icky after her “big” Tuesday of fun and that carries on as the week goes on.

The LP can give her a headache. The Cyclophosphamide can cause a whole host of nasty side effects and the Cytarabine (the one that’s given for 4 days in a row, 3 days off, then another 4 days in a row) builds up in your system the longer you take it.

My life is “LEGO-RRIFIC”!

We’ve managed to make it almost through the entire first week. Tomorrow starts the second week of this treatment. Every chemo drug has a high point where the drug is at it’s most toxic, that is called the Nadir. The drugs that she’s currently hit their nadir at about 7-10 days. This means that the drugs that she received last Tuesday are starting to hit their high point. Because she’s taking the drugs on back to back weeks, the effects start to build on top of each other. By the end of this week/beginning of next, Angelica’s counts should be very low and may still be heading down for another week.

We would expect that her counts would be very, very, VERY low over the next two weeks.

One side effect of these current meds is that they can cause fevers. And, any fever is an automatic trip to the hospital. Another side effect of these meds is that her counts could go to low and sometimes when your counts are too low…..you can get a neutropenic fever. Again, with the free pass to the hospital…..

Obviously, we don’t want a free pass to the hospital. We don’t want a medically induced fever. We don’t want a neutropenic fever and we definitely don’t want an infection based fever. So we are praying for Angelica to stay healthy over the next couple of weeks.

Her spirits are high, and she’s doing quite well, emotionally. Her friends keep in contact with her and I’m so thankful that she has a couple of AMAZING girlfriends who are such a great encouragement to her. Geli is working hard to stay on top of her school work, most of the time…..she is a teenager and often would rather be playing on her iPod Touch than plowing through Socials homework. But she is doing really well….especially considering that she is in the French Immersion Program.

We are hoping that with the next stage of chemo that she’ll be able to attend a bit of school. She was able to go to school quite a bit the last time she received Methotrexate.

We have managed to stay out of the hospital since November and it’s been amazing. Not that our time has been all lollipops and roses, but it’s been so nice to attempt to have things as “stable” as they could be.

The stress level in the house seems to be a bit lower. Josiah has had probably the most noticeable change over the past 2 months. He is sort of sleeping better. He is not wigging out, as much. One of the nicest aspects…..he is no longer peeing himself 25 times a day. He went from almost potty trained to mostly completely not potty trained and now….he’s doing better than he was before the diagnosis. He has definitely calmed down a lot and I believe it has a lot to do with things being a bit more calm and stable around here. He is 3 and while that brings its own set of challenges, reducing the “crazy” in the house has really helped him to be at peace, which in turn helps us to be more at peace and for that, we are so thankful.

Siah, just chillin’ in the sunshine….

Jeremy is just Jeremy and we are waiting for him to get some testing done in regards to his unique talents and abilities. His unique-ness allows him to be a bit self-focused and self-absorbed; and while his intensity feeds off the stress or peace in the house, for the most part, he is doing okay.

Xani is struggling. I’m not sure what to do. I’m not even sure how to talk about it all or what to do with it all. We had a good talk on the weekend and I’m hoping that it helps her some. Mentally and emotionally this is all a bit much for her and I think that the stress has caught up with her, physically. She’s been so sick over the past month. It’s just not normal.

We do have all the kids booked into see our family Doctor next week and it will be good to get a check up for all of them.

Jon and I still feel like we are going at a million miles an hour and these 2 weeks of treatment don’t really help with that. Often, the kids will all be put down for the night and we’ll have the opportunity to “spend some time together” and instead, we’ll just go to bed because we are just so tired. Going to bed at 8:30-9pm makes you feel like you are a million years old especially when you wake up the next morning and don’t feel rested. Ah well, it’s only a time, right???

We are slowly making our way through this. It feels like it’s been FOREVER ago that we found out about the diagnosis and it feels like we have FOREVER to go, but we are more than half way through that THAT is awesome!

What? Do I have something on my face?

One day at a time and we’ll make it through this.

Thank you for standing with us and encouraging us and supporting us. We are so thankful to have you in our lives.

Other Side Effects

A little perspective from me (Jon)…

I remember clearly the January day in 2005 when Patti looked at me with a worried look on her face and said that she wasn’t feeling the baby move. I remember the Sunday afternoon, feeling tired and wanting to take a nap. I remember thinking about the emotions of a pregnant woman and being thankful that this pregnancy was getting close to a conclusion. I said to Patti, “What could really be wrong? If you haven’t felt him move by later this afternoon then we can go to the hospital and they can do their Doppler thing and you can hear the heart beat and they can tell you that everything is OK.” Then I went and took a nap.

The events of that day are forever embedded in my mind because that was the day that I lost my naivety. As you can discover from reading older posts, we lost our son Nathaniel. That was one of those things that was “never going to happen to us”.

I’m not sure why we tend to excuse ourselves from tragedy, but we do. We think that “bad things don’t happen to good people.” We think that if something bad happens once that we have “had our share of problems” or “paid our dues”, implying that tragedy will over-look us in the future. Coming face to face with tragedy, illness, death, financial catastrophe may do many and different things to each person, but one thing is common to all, we loose some naivety.

Loosing our son rocked us individually, it rocked our marriage, it changed our perspective on life, on relationship with God. It made us stronger and it made us more fragile. Having Angelica diagnosed with Leukemia this summer took another blow at our naivety. I can’t say what the end result will be, because we are still in the throws of shock and coping and cleaning and sanitizing and the emotional randomness that exists in our home. I can say that loosing naivety makes you a little weaker; not as bold and unquestioningly confident.

I called this post “side effects” because side effects are the unintended or unexpected or unpredictable consequences to an otherwise straightforward course of action. For example, Angelica gets a drug that will help to stop the reproduction of Leukemia cells and at the same time build up blood marrow… the side effect was temporary diabetes.

Getting to the point… Blood cancers are often discovered while treating “flu like symptoms” and when those symptoms present in another of your children, there is nothing to stop you from mentally wondering “what if”… The other night our baby, Judah, was feeling ill. He had a fever and signs of the flu. He had also had some sort of digestive problem where he has had a lot of diarrhea and sometimes a bit of blood and mucus in his stool. As the evening wore on, I could see that Patti’s anxiety was growing. As we went to bed, Patti was really concerned and I was laying there beside her and felt unable to console her… or myself for that matter. I can no longer say “everything is ok”. I can no longer say “you’re over-reacting”. I can also no longer shrug it off and forget about it. I am now aware that this kind of thing can happen. I am now aware that it can happen to good people. I am now aware that “lightning can strike twice.”

I brought this up at BC Children’s hospital at our last appointment and discovered that the oncology clinic there commonly writes orders for blood counts for siblings and parents of oncology patients, because as it would turn out, this is a common “side effect”.

After seeing a doctor, and checking things out, we know that Judah is OK. He had the flu and is mostly healed and is acting much healthier, but the naivety that something could go wrong is gone. Now this doesn’t make us pessimistic, where we sit around expecting catastrophes all the time… far from it. We expect that things will go well with us and we expect there to be blessings that come our way. We actually remain optimistic… but when “symptoms” of something negative start to appear, they are not as easy to dismiss.

~ Jon ~

Christmas Morning

For all of the ups and downs that this year brought, Christmas was so amazing.

I’m so aware of all that we “have” as a family, in having each other and I’m so thankful that we were all together to share our love between each other.

The baby was the first one to wake up. He started hollering for some attention at 6:40am. I was pleasantly surprised to see that none of the other kids were awake. Last year, none of the kids woke up before 7am and so it wasn’t completely out of the ordinary, but all the memories I have of Christmas morning, involve insanely early hours of waiting and waiting and waiting. I’m thrilled that my kids “sleep in” but think it’s a little abnormal, no?

Anyhow, we managed to get in a diaper change and a nursing session before Xandra came up stairs at 7:20am wondering if she was allowed to wake up the other kids and get their stockings.

Josiah wandered into our room moments after Xani and then she went and woke Jeremy up. The three older kids headed downstairs to get their stockings.

We had decided to let Geli sleep in, if she could, as sleep is a precious, but fleeting commodity for her, these days. The steroid that she’s on has the ability to mess, horribly, with her sleep and so if she can sleep….we let her. Cause another side effect of the steroid is moodiness and if you combine moodiness with sleeplessness….well, it’s just not a pretty picture. Add in 2-3 loud noisy children who make repetitive and often annoying noises and you have an AWESOME recipe for some serious meltdowns….and so the plan was to let her sleep in. Unfortunately, Geli had been awake every half and hour since 3am and was so tired but just couldn’t sleep. It’s so hard when things like this happen, because there is not much we can do. And we’re left to sit beside her, watching her suffer.

The kids spread themselves all over the floor and went to work on their stockings. The squeals and giggles indicating that they were fully enjoying themselves.

This was Judah’s first Christmas and while he’s a little young to understand what’s going on, he totally enjoyed watching the joyous chaos that surrounded him.

Josiah is showing off the onion that he found in his stocking. In my family, we always got a carrot, or potato or onion in our stocking. It was always funny to be searching through your stocking and to come across this totally-out-of-place item.

This year, my dad explained the background behind the veggie in the stocking. Apparently when he was a little boy, finances were tight and his mom used the veggie as a stocking filler and he carried the tradition on with his family. We never knew this growing up. All we knew was that it was hilarious to find a potato in the toe of our stocking on Christmas morning.

After the kids finish with their stockings, we make them freshen up a bit by brushing their teeth, combing hair and putting on clothes but this year I was a little lenient with the “go and put daytime clothes on” rule. Then, we have breakfast together. The kids love and want to eat those little tiny boxes of cereal. We normally set the table up really fancy and have a nice family breakfast. This year we didn’t go quite so fancy. It was a more relaxed, laid back morning and that was nice too.

Jon and Geli were just taking it easy. I’m so proud of this beautiful, young woman. She is walking through a horrific journey with grace and courage and strength.

While Jon and the kids had sugar cereal. I ate the most disgusting gluten free cinnamon bun. It wasn’t that it was even that gross tasting, but that it had the consistency of cardboard. Cardboard drenched in sugary icing. BLECH! Judah was LOVING his pears with cocoa powder.

While we cleaned up from Breakfast, Jeremy had a quiet moment and if you know him at all you’ll understand why this particular event is worth mentioning and posting a photo of.

Finally, it was time to “OPEN PRESENTS”. The kids all find themselves a “spot” that the designate as theirs.

And then Jon passes the gifts out.

This year, Jeremy was SOOOOOO excited about the gift that he was giving to Jon and he wanted Jon to open it right away.

Jon unwrapped and unwrapped and unwrapped and unwrapped and soon there was a HUGE pile of paper at his feet. Finally, that HUGE present turned into….

While Jon passed out presents and I snapped pictures, we used the BEST hands free device EVER. We put the Baby into a box….

Doesn’t everyone do this???? For baby’s that aren’t quite sitting steadily on their own…..He “can” sit, but often wobbles from side to side (and falls over). This Rubbermaid bin keeps him sitting, makes sure he doesn’t tip over, and all his toys are within arms reach inside the box. It’s GENIUS as far as I’m concerned.

We even gave him a present to open…

He wasn’t entirely sure what to do with it at first, but very quickly he figured out exactly what it was for……

And Man….was that ribbon ever delicious!

Thanks to the generosity of some amazing people our children were so SO blessed this year. (more about that to come in an upcoming post)

Josiah was given this sweet baseball cap and he looks so adorable, doesn’t he?

This was such a fabulous Christmas and we were and are so blessed.

I hope you had a wonderful Christmas. We are so thankful for health and life and the blessings of each other and of all you wonderful people in our lives.

If you don’t mind sharing, what was the best part of your Christmas Day?

Christmas Eve

Last year, we had a Christmas Eve Fondue with Jon’s parents and my kids LOVED it.

In fact, this year in November Jeremy started asking about that thing that we do every year….with the sticks and the cheese and the chocolate and the dipping. I finally figured out that he was talking about our Christmas Eve Fondue only…..we had only ever done it with the kids ONCE.

But I would LOVE to start a tradition of a Christmas Eve Fondue.

This year we were unsure how the whole celebrating Christmas with the families was going to look because we had Angelica to think about and her blood counts to take into consideration. Fortunately, everyone on both sides of our family was healthy and there was no issue about that. We did stay at or close to home though and it was only immediate family.

Jon’s parents came to celebrate Christmas Eve with us and it was such a great evening. We were able to have dinner and open presents and there was nothing terribly stressful or horribly rushed about the evening. The biggest challenge was making a dairy-free, egg-free, gluten-free fondue……….that tasted DELICIOUS. See, if I had used regular bread then when it was dipped into the cheese, it could have pieces that fell off and I could have eaten then and then bad things would have happened…and so it was necessary to make the entire fondue safe for everyone.

But…a gluten-free, dairy-free fondue can be done and it can taste so SO YUMMY!

The first thing that I did was to call my friend who is the manager of a Cheese and Bake Shop in White Rock and ask for her suggestions for some cheese that I could use in a fondue that wasn’t from cow’s milk. She suggested I use a mellow Goat Gouda and a crisp tasting Sheep Cheese.

This is the same friend who shaved her head raising money to support our family. She is honestly the most amazing person and such a great, great friend. We’ve known each other our whole lives and I love her like a sister. In fact, when we went by the store to pick up the cheese, we had someone ask if we were sisters. If you saw pictures of her, you’d know that was a great compliment. She has the most gorgeous HUGE blue eyes, the highest cheekbones and the greatest, most amazing smile. She is one of those people who are beautiful, both inside and out.

Anyway, she suggested that we try these two cheeses and the end result was AMAZING! It was a fabulous non-cow dairy cheese fondue and EVERYONE loved it and it was the perfect blend of cheese and had absolutely NONE of that nasty “goaty” taste.

If you are needing some cheese or fresh bread or any treats to go with cheese or fresh bread, I would totally suggest you check them out. Amazing products, Amazing staff and the management is…….AMAZING!!!!

The Roadhouse Bake Shoppe on King George in White Rock, BC

Back to Christmas Eve….the Cheese fondue was so SO Yummy! We had a bit of trouble with the oil fondue not being hot enough and we had even started it heating about an hour earlier, but while we were waiting for it get a bit hotter, everyone was downing the cheese fondue. I had bought some gluten and dairy free bagels and had cut them up into hunks. It was perfect for dipping. I had blanched a bunch of veggies and the kids were plowing through them too. I had cut up some moose meat and some chicken and also had some tempura sauce on hand but that stupid oil just wouldn’t get hot enough.

Cheese

We had eaten more than half of the cheese and Jon was turning the burner off so it wouldn’t burn to the bottom of the dish and CRACK….the dish broke….and that was the end of our cheese fondue.

It wasn’t exactly funny at the time….more annoying than amusing. The oil still wasn’t boiling and so I just took the meat to the kitchen and cooked in a pan and then we finished off our dinner.

It was just nice to be able to “be together”….that’s one of the important things about Christmas to me….having time to spend with family.

We cleared off the table and got to the “most important part of the meal” – according to Jeremy – the Chocolate Fondue.

There is a (dairy-free) Lindt Dark Chocolate that when mixed with a little soy creamer, makes the most delicious dairy free chocolate fondue. I have taken it to many places and no one ever knows or guesses that it’s not just a normal chocolate fondue.

Josiah gives it two thumbs up. We had TONS of fruit and also dipped some cookies into it. We ate until there was no more chocolate and everyone was full.

We cleared the table and started opening presents.

There were the “traditional” Christmas Pyjamas from Momma and Daddy.

For whatever reason, Jeremy needed to model his…both the front and the back…..and we HAD to take a picture…what a funny kid.

The evening ran WAY PAST the kids “normal” bedtime and Judah was a bit cranky which is never very fun.

But, He seemed to get a second wind and cruised on for at least another hour.

It was a great night and we enjoyed ourselves so much. After the kids went to sleep, e tidied up the house, put the presents under the tree and just after 1 am, just as we were getting ready to head to bed – the baby woke up…..and I cried. Okay, i didn’t, but I could have….and he did just nurse and go back to sleep so it wasn’t that bad.

In my mind though, Christmas Eve was a great night. Lack of sleep, food mess-ups and all…..

Do you have any favorite Christmas Eve traditions?

Christmas is Coming & other updates…

Well, the baby is playing on the floor, the boys are watching Despicable Me; and the girls (and Jon) are in town to get Geli’s third dose of chemo for this round.

We went and got her blood work done yesterday and her numbers are quite low. Not “freaky scary hole up in the house for a week or two” low, but “avoid mostly everyone and stick to just family members” low. We should hit the “wrap her in Purell coated bubble wrap” low by New Years Day; and really, we are praying to avoid any trips to Children’s between today and January 11th…which is the next scheduled chemo dose. If you are the praying type, we’ve love some prayer that she (and we) stay healthy and protected between now and then. We are really looking forward to some nice quiet, calm peaceful days and nights between now and then.

When Angelica went for her 2nd dose of chemo last Thursday her white blood count was on the extreme high end of normal. This was a bit unnerving for us as the last time they were anywhere close to high was when we found out that she had Leukemia, BUT….this time, it was only an indicator that she had a virus and that she was fighting it off. This was FABULOUS news because her body is trying so hard to do what it was created to do and in the middle of all of this assault of her body – that is wonderful.

She successfully fought off that virus (after it tried quite ridiculously hard to kick her butt – she did have a rough couple of days and we weren’t sure if it was the chemo or the virus or both) and only has the slightest bit of a cough right now. The rest of us are steadily taking our vitamins, avoiding the throngs of people out there and trying to do everything that we can to boost our immune systems so that we don’t get anything, and so far it seems to be working.

With everyday that passes uneventfully, I can feel my family starting to breath a bit deeper, starting to relax, starting to act less strung out and this is such a good thing. Josiah is starting to go to bed more calmly (he was screaming hysterically for more than half an hour at bedtime regardless of what we did to encourage, console or help him to sleep) and he’s actually been sleeping through the nights (as opposed to waking every hour or 2). The not sleeping was just making EVERYTHING worse and so to have that not be as HUGE of an issue is so nice.

We are hopefully working through the issues with Judah. <>

We’ve not seen a lot of blood in his poop recently and so we are hoping that things for him are on the upswing. We’ve gone from 15+ bloody diarrhea diapers in a day to about 4 or 5 more normal-ish looking jobs. He’s throwing up WAY less and seems less like he’s in pain and is waking less in the night.

It might take some time for his intestinal tract to heal but I believe that he’s on the mend. I still feel quite a bit of stress about him, but it’s less now that he seems to be getting better as opposed to getting worse.

I feel like we are definitely headed in a more relaxed, peaceful direction, and yet I feel a bit like I’m holding my breath. I would desperately love for things to carry on as they are and for nothing to upset this delicate balance that we’ve got going on. It’s a reality that I have to be prepared for that Angelica could end up in the hospital between now and the New Year. It’s not a certainty, nor is it even “likely” but I cannot ignorantly walk around with my head in the clouds thinking that nothing like that could possibly happen to our family. For who I am, I need to at least be a little bit “prepared” that it might happen and then I can be ever so pleasantly delighted when it does not happen (positive speaking, right?). Having that thought in the back of my head, does bring it’s own level of stress and I hate that. I hate that I feel like an elastic that is wound too tight, but as long as I can hold steady everything is okay. If there is one more twist, then I might snap.

I don’t actually believe that I’ll snap, but to have things go chaotic again seems like it would very much upset this fragile balancing act that I’ve got going on. I do feel a bit more grounded with every day that passes, but I still feel like I’m trying to get back to a position of strength, not like I’m working or operating from that position of strength.

Being that kind of person that I am……it sucks to be in this place.

Other than my stress level – things are carrying on as usual. We are almost ready for Christmas. Siah is SO excited. I forgot how much fun it is to have a 3 year old for Christmas. I think 3 is the perfect age. He can’t wait for Christmas to come and his Holiday Cheer is so infectious.

We are doing well, over all, and I am so thankful that we are all together as a family this Christmas and that Geli’s prognosis is so good. We are looking forward to 2011 being an amazing year.