I am just trying to survive.
I am on day 3 with a cranky, not feeling 100% baby who wants to be held ALL. THE. TIME! And, that would be almost okay if he would nap, but so far today we’ve done 2 naps for a combined total of 19 minutes. YAH! Cranky, OVERTIRED, Not Feeling Well Baby, for the win!
The house is um…..sort of somewhat tidyish, ya now minus the rice crisps that the baby was eating off the floor that he managed to smoosh into 5 million tiny shards. I still need to sweep those up, and I really should be folding the 4 loads of laundry and washing Geli’s bedding before she comes home tonight and all of that is kinda difficult to do with a cranky baby hanging off your hip. Did I mention that the baby weighs 30 pounds? Yah, cause doing anything while carrying around 30 pounds is not the easiest thing in the world.
I finally packed the boys up and put the baby in the stroller and we walked around our complex a few times and out and around the cul-de-sac just to get a bit for fresh air. Honestly, I had hoped that maybe this tired baby would crash, but no luck so far.
BUT…..he is playing on the floor in front of me, while I sit on the couch typing up this post, so that’s positive right.
I did manage to get a roast into the crock pot this morning and so at the very least dinner is taken care of.
Did ya catch that reference up there a few paragraphs back? Jon and Geli are coming home tonight.
As of 7pm tonight, the 48 hour time line for her blood to culture any bacteria is up and she gets to come home. It’s pretty much determined that it was just a virus and they don’t want her there any more than we do, and so we’ve asked to come home as soon as the 48 hr wait is up.
Her white count is actually coming up and her neutrophils were above .5 this morning and that’s a good thing. Bad thing was that even though she received red blood yesterday it only raised her levels by 15 points and that’s not enough to help her feel better. She was at a 71 yesterday for her hemoglobin and while some kids can tolerate being down as low as 60 or 50 something, Geli starts to feel pretty rough at 80 something….. She feels short of breath, and has headaches, and feels like her heart is pounding and is major dizzy and light headed. The chemo that she is getting hits it high point of effectiveness (the nadir) tomorrow and so some of her counts are still coming down. So the 85 that she hit as of this morning will probably end up back in the 70’s or lower as of tomorrow and so in order to deal with that, Geli is getting another “strawberry shake” today. Her platelets were also at a 20 and while that’s not the end of the world, we don’t want to have to be on pins and needles around her in case of cuts or bruises and so she is also getting platelets today. But after she gets filled full of red blood and platelets, she is good to come home! Hooray!
I spent a quiet day at home with my boys. We sat outside for a while and it was so nice to just be outside in the sun. I love the sun. It makes me feel so happy. I’m so ready for spring and summer to be here. I love the snow in the winter, but the rain…..well, I’ve had enough rain this year.
Praise the Lord! Jon and Geli are able to come home to-night, We will be praying for a good nights sleep for all. Love Grandpa and Grandma
Oh Patti I love the Photos and the little comments on them… I am so glad you had some time in the sun…. Love the pic of Jon and Geli… looking pretty happy too! So glad you are all together tonight. Hope you all sleep well. As well as can be…. love ya!
Dearest Patti – I read your blogs fairly often. Although I’ve not sent a comment before (I don’t think!), you, Jon and family are in our prayers. I feel touched by your pain, and rejoice with the triumphs. I’m so glad that Geli had a nice birthday. You are an amazing mother and wife. One day all this struggle will be behind you, and you WILL be even stronger in the Lord. I’ve learned that time shows us that love truly does bear ALL things.
with love,
Claire and Keith
Yes, boys ARE magical!