Month: January 2018

Daily Photos

Daily Photos

Oh my sweet boy! He’s come so far! He’s been in panic mode for a few years. With counselling and following his lead, he’s starting to calm down and be more present and it’s INCREDIBLE! He has always refused to read because he was scared that he couldn’t. We’ve been focusing on reading, recently, and tonight, this was our reading selection. I read the Robert Munsch book to him. We read 30 pages of “The Bad Guys” together. He read 1 chapter of Super Fly Guy and he read the other 3 books by himself. It’s crazy! He says he doesn’t like to read but he asks to keep going! #judahzane #readinglikeaboss #feardoesntwin #flyguy #elephantandpiggie #robertmunsch #thebadguys #grade2 #thisis7
Posted by Intagrate Lite

Advocating Hell

Advocating for your child is it’s very own unique level of Hell. The mind games alone are enough to make you walk away and not even try.

I’m trying desperately to help you understand my child and to see that he’s not deliberately trying to be difficult and defiant. While at the exact same time, I want to not lose your support, regardless of the fact that I may be challenging you to step outside of your preconceived understanding. I am desperate to not come across as a helicopter mom, trying to make my child’s life easy. I’m hoping that you “hear and see” me as an expert on my child with valid input and not as an overprotective, un-objective parent. I want recognition that I come as a well versed peer and not to be on the receiving end of some bias towards me or my child.

I view children as wanting to please, as wanting to do their best…and when their behaviour deviates from what we’ve come to expect…..I question, “What is their Behaviour Communicating to us? What are they struggling to verbalize. What are they struggling with?”

Siahs struggling at school. His behaviour is one of escaping into a safe world…..classically autistic. Rather than clamping down on the behaviour, I believe that we need to figure out what he’s struggling with. Once we can help him……he will have energy to once again rise to the level of success, we have previously seen and even surpass it.

Until this situation gets sorted out, I worry tha we are stuck in discomfort.

  • make (someone) feel uneasy, anxious, or embarrassed.

I dislike discomfort but I dislike my child struggling even more.

It’s hell.

We, special needs parents do not enjoy ruffling feathers. We do not enjoy pushing the bubble. We do not enjoy messing up the status quo.

We would give just about anything to just be typical and never need to spreak with you. But we don’t have that option and so we carry on. Please don’t judge us for that.!

Hear us! Really hear what we have to say!