2 Stitches

As if we didn’t have enough drama in our lives right now, Siah decided to shake things up a little last night.

Jon, Jeremy and Siah were down in the basement playing a video game. Siah was sitting on the arm rest of our futon and he unbalanced himself and fell forward hitting his head on the corner of a wooden toy box.

Breakfast

Breakfast

Mom, the girls, Judah and I were up in the kitchen and heard the thunk. It was that loud. Then we heard Jon yell and then we heard Siah crying and it was “one of those cries.”

I raced downstairs and met Jon at the bottom of the stairs. He handed Siah off to me and there was blood everywhere. I could see that his head was split open in between his eyes. We came up stairs and got a rag to try to stop the blood. It was apparent that he’s need stitches.

First Bite

First Bite

We hoped that we could make it to the local clinic that did Jeremy’s stitches as we’ve talked with them about our challenges of dealing with germs and sickness due to Angelica’s suppressed immune system, BUT….it was 7:30pm and they were closed at 8pm and they were already over booked for the day and were not even answering their phone.

And so Jon headed to the ER.

The plan was for Jon to wear a mask into the ER and explain the situation and see how they could work with us to get Siah the care that he needed while attempting to keep us as germ free as possible.

The staff at Langley Hospital were amazing.

Deliciousness

Geli’s Delicious Cinnamon Buns

They didn’t have any open rooms at the time, but they planned to get a room emptied and clean out and to bring Jon and Siah in and straight back to the closed room as soon as possible. They gave Jon a small mask for Siah to wear in and out and in the waiting time, they stayed in the van to minimize the possibility of picking anything up from other ill people.

They waited in the van and the triage nurse came out to the van to assess Siah and yup….he needed stitches.

It took a few hours, and in the mean time, Siah fell asleep.

See Food

See Food

When the room was finally ready, Jon carried the sleeping Siah in. He said that they got quite a few looks, as he’d been in and out with his mask on and now they were carrying a limp child in with a mask on….can you imagine that others in the waiting room must have been wondering what was wrong with this child that they had to wear masks????

Jon tried to wake Siah up to explain what was about to happen, but he had tired himself out so badly with his initial screaming when it happened that he was NOT waking up. He was in that drowsy state where you’re not really awake but not really asleep. They finally wrapped him like a burrito to keep him from being able to move his arms and the Dr checked to see that Jon was okay with what was going to happen and once he was sure that Jon wasn’t going to flip out….they started.

They had already put on a fast acting numbing cream and they started injecting the freezing and that’s when Siah woke up for real. So in his mind, probably, he went to sleep and was woken up to some dude poking his head with a needle. AWESOME! Jon said he screamed until he wasn’t breathing. Brutal! The Doctor only put in two stitches because he figured that was about all that Siah could handle and even though he was being quick, it was still pretty traumatic.

He told Jon that the cut was extremely straight and that it should heal amazingly because it was such a precise cut.

2 Stitches

2 Stitches

They masked up again and came home. Siah settled down pretty quickly once Jon was able to hold him and was almost asleep by the time they reached the van.

They got home before 11pm….not bad considering the waits in ER’s now a days.

He went to bed right away and slept through until 6am when he crawled into bed with us.

This morning he seems to be doing okay and so we are just gonna take it easy today. Geli’s doing pretty good this morning too. We were attempting to adjust her meds schedule around so that we were not having to wake up at 3am to give her a dose, but that meant that she might be a little barfy this morning. She did feel a bit off and dry heaved for about 45 minutes off and on until the meds finally kicked in. Her and Siah are back downstairs in the basement this morning. She is teaching Josiah how to play the original NES Nintendo Super Mario Brother’s game. He’s thrilled and she’s distracted and it’s good.

This is now the 4th of our 5 kids that have gotten stitches in their head…..when she was about 8 years old, Geli wacked her head open on a floor heater and needed 3 stitches. When Xani was about 10, her cousin went all vmapire on her and tried to take a bite out her head while they were jumping on a trampoline and she needed 3 stitches. A few weeks ago, Jeremy got 3 stitches in his chin and now Josiah has had 2 stitches in between his eyes…..GAH!

I’m really hoping and praying that Judah stays safe and protected.

Do you have any cool stories about “that time you got stitches” or your kids……Please share!

Barfing Sucks

Geli had her appointment on Tuesday for this week’s dose of chemotherapy.

Not surprising her counts were low enough to score her a free bag of platelets. In fact, she was actually too low to receive the intra-muscular injections BUT………there seems to be WAY TOO MANY BUTS recently……..they were out of platelets and had to have some brought in from an outside source.

They did end up giving her the injection anyway and had her hold bags of ice on her thighs to help her blood clot. (Platelets help your blood to clot and when they are low you are more susceptible to nose bleeds and other uncontrolled bleeding from cuts or bad bruising.) After the injections, they have to observe Angelica for 3 hours to make certain that she doesn’t have a serious allergic reaction and so if they had waited for a couple of hours until the platelets came in and then gave the platelets over an hours time period and then gave the intra-muscular injections and then watched her for the 3 hours…..well, they wouldn’t have been able to leave the hospital until after 7:30pm. This way, they were able to leave and get home by 6pm. So, it cut a few hours off the day, which was nice.

Angelica felt pretty good on Tuesday during the day, but started to feel a bit off by the time they got home…..She ate about half of her dinner and then started to really struggle with nausea. She tried valiantly to not barf but about 10:30pm she just couldn’t fight anymore. It was not pretty and it was the start of a very long, very nasty night.

We were up ALL night with her barfing and barfing and barfing and nothing was helping.

Finally she fell asleep around 5am and slept until the next “episode” at 7am. She managed to eat a tiny bit of breakfast, took her meds and around 10:30am was having a hard time keeping her eyes open or being able to sit up and so I sent her off to bed. She slept hard, only waking for me to give her some more anti-nausea meds at 11am and then slept until 2pm.

When she woke up, she ate some soup and crackers and seemed to look and act a little perkier than she had been. She seemed to be acting like she might be on the mend in the afternoon. Although, she was still pretty tired; she tried to eat some dinner and then when the other kids went to bed around 8pm….she did too.

I had planned on going to an exercise class with my sister and so I dragged myself off to the class and although it wasn’t my best class, for having next to no sleep, it wasn’t too bad.

I wondered how the night would go for us, but aside from our two littlest men tag teaming each other and managing to wake us every other hour, it was a pretty quiet night.

This morning, I was so tired, I couldn’t get up and so Jon got the kids up and off to school and I was surprised to hear that Geli had been up and at ’em like nothing was wrong…..AWESOME!

Her and Jon headed off to a BC BioMedical Lab to get her blood work done to see if she’d need another transfusion tomorrow and then they came home.

I asked Geli if she’d like to make some buns or bread with me and she was quite excited by the idea. If Geli was excited…..Siah was ECSTATIC! He LOVES to cook and bake. I’m not usually so excited as he makes quite a mess and making buns is already quite a messy endeavor, but I figured we could try to make it work.

Here is Siah, excited by his little bit of dough. (We were at “waiting for it to rise” stage)

Cheese

In this next picture you can the “mess” a bit clearer…..Siah really “gets into” his baking.

Flour Everywhere

I told Geli that this could be a “Home Ec.” class and that part of the Home Ec. mark always included the clean up.

Cleaning Up

We waited for the dough to rise and then punched it down, then it rose again and we punched it down again and then broke the dough up to make Cinnamon Buns, Coconut Buns, Cheese Buns and Plain Buns. The Coconut Buns are baking, but here are the rest of the buns still rising.

Buns, Buns, Everywhere

Angelica and Jon have gone to the High School to meet with her teachers. Based on her number today, she will be able to attend school on Monday. (They are trending upward, and should be okay for Monday.) She has more chemo on Tuesday, but should be good to go for Wednesday through the following Monday. Then she starts the Third Round of her treatment on Tuesday September 21st and that stage requires her to be admitted for 3-4 days every 2 weeks.

We are praying that Angelica would remain healthy and be able to attend school over this next week and a bit and that she would totally enjoy her school time and be able to feel integrated in with all her other class mates. Also that our other kids would remain healthy and not pick up any illness from the other kids in their school.

First Days

I’m blown away that we’ve made it to the first day of school. That means that we’re in September and wasn’t it only like yesterday on June 16th that our world was rocked….

The whole summer has managed to slip right passed us and here we are staring fall in the face as it comes barreling towards us at full speed.

Xandra and Jeremy are headed to school for…….are you ready for it……..an hour. I was tempted to just keep them home as the excitement of getting up and getting ready is completely chaotic and them to only have them home and “bored” in a hour…..well, that’s hardly even enough time to get a cup of coffee, sit down and enjoy it….throw in a couple of trips to the toilet for Siah, a feeding for Judah and well……so much for an hour of quiet time, eh?

Oh well….there is always Wednesday and let me tell you, I’m looking forward to Wednesday.

DSC_0516Jon and Geli are headed into an appointment at Children’s Hospital. They need to be there for 10:15am and once there, they need to find out Geli’s counts (which at last report were brutal, almost non-existent low and are expected to be even lower), then she has two intra-muscular injections (one in each thigh) of a chemo med, and one IV chemo med and then…….they come home. We are hoping, hoping, HOPING that the rest of this week is SO boring and that we have absolutely no medical updates on how Geli is doing because there is absolutely NOTHING to report on…..that would be the most awesome week ever.

(This is the most recent picture I have of Geli. She is growing up to be such a beautiful young lady.)

She is doing well. She is still a bit nauseous and gags and dry heaves from time to time. This is particularly frustrating as she is on 2 types of drugs to kill the nausea 24/7 and a third one if things are still bad. I hate that she’s on that much medicine all the time but if the alternative is barfing, well….that’s worse and we’ll do what we have to not deal with that. She has pretty much gained back most of the weight that she lost in her two to three week barfing stint.

We finally got a referral to a podiatrist regarding her toes and he was able to help some. He’s been able to alleviate some of the swelling and irritation which helps with the pain, but the biggest concern is with the infection in the tissue surrounding the toenails. With her White Blood Counts too low to be able to fight any infection, she must be on an antibiotic. What we’d really like to see is a miracle with her toenails growing out quickly and all infection gone.

She is annoyed and frustrated with the sheer number of pills she needs to swallow multiple times in a day. Its hard to “have” to be always responsible and take all your meds and drink 2+ Litres of water and eat at all the right times. She is doing well, but we can tell that it wears on her sometimes. There is so much for a 13 year old to be dealing with and really, no child should be dealing with all of this.

School will be interesting this year. Geli is excited about starting Grade 8 and I think that having something to do will be so good for her. She has definitely perked up since we started talking about school and school work and routines and supplies. We bought her an Agenda and she’s even started filling it out already with the dates of her Chemo appts and other dates that she knows in regards to school. She is enrolled in the local High School and will attend when her counts are good enough, but will also do a fair amount of work at home or in the hospital. There is a meeting at the school scheduled for this Thursday and we should have more info after that meeting.

We are in the final stretch of this second stage of the chemotherapy treatment, and the third stage is scheduled to start on Tuesday September 21 as long as her counts are good.

We just keep moving one step forward day by day and hoping and praying for the best. This is not an easy road and I can’t help but think of others who have been through this or similar roads and I feel sick that I didn’t understand or know or realize the extent of what they were going through, I’m so entirely grateful to everyone who is walking along side of us. There are times when Jon and I feel so overwhelmed and burdened and yet we know that we are not alone, and even in our darkest moments of pain and fatigue or when we “feel” alone we know that there are so many (YOU) standing with us and supporting us with your love and prayers and thoughts. It helps us to keep on fighting, and so once again – We thank you!

The Many Faces of

Judah is just over 2 months old and growing bigger and cuter ever day (at least we think so).

DSC_0518

He weighs over 19 pounds now and that is evidenced in the size of these amazing thighs.

DSC_0537

He LOVES to smile and there is something special that happens when he smiles. His eyes have so much life and joy in them, you can’t help but feel happy.

DSC_0554

He has so many cute expressions and different faces.

DSC_0597

He LOVES to interact with people. If you get anywhere within his line of sight – it doesn’t matter if you’re looking at him, he starts to smile in anticipation of you interacting with him.

DSC_0575

He’s still an amazing sleeper, but often times, he wants to stay awake until we go to sleep which doesn’t allow for much down time in the evening, but again…it’s really hard to get upset when he’s smiling so HUGE at you. It’s not that he’s cranky and awake….just awake and wanting to talk.

DSC_0546

This little boy has such a sweet, sweet disposition and we love him so SO much!

DSC_0639

You can go here to see all the pictures in this set.