Well, we had an uneventful night last night.
Around 7:30pm, Angelica went into surgery and got a VAD placed into her chest. She went through the approx 60 minute surgery like a champ and was quite groggy when she got back to her room. After a few sips of juice – the first food she’d been allowed all day – she just relaxed in her bed.
Angelica fell asleep around 10pm and slept most un-interrupted until about 1:30am. We had a short Jaunt to the toilet at that point and then got back to bed. She was in a bit of pain from the VAD and so got some meds to help with that.
She slept again until 5am when we needed to make a second trip across the hall. Once finished her business over there, she came back to bed and was out again until 7am this morning.
We brushed our teeth, had a few bites of cereal, ate 2 pieces of soggy bacon (maybe not the best choice – she feels a bit gross now) and have had our vitals checked. She’s doing well, but tired. Her counts are a bit low which would be a factor there.
So far, we’ve heard that she will probably be having an echo cardiogram today sometime around 12:30pm….this could mean around 4pm hospital time.
She’s resting in her bed and watching Road to Terabithia.
Last night her brothers and sister managed a visit, but it’s hard when you’re not feeling that great. Mostly the kids just needed to see Geli and know that she was doing okay. They explored the hospital a bit and watched some of a movie with Geli and then Nana Karen took them home.
Around 7:30pm – Brianna, Rebecca, Zacharius, Aunty Chelle, and Uncle Kenny came by for a quick visit. Angelica had been sleeping, but they met her in the hall on the way to her surgery and were able to give a quick hug and say a quick hello before Geli was taken in to be put to sleep. They brought presents and although Gel wasn’t able to open them last night. So far we’ve opened one present already this morning. It was a nice morning treat. Thanks Guys!
Jon and I went to Labor and Delivery last night to try and figure out what the plan is as far as me having our sweet boy and I’ll write about the chaos of that in another post.
We thank you so much for your encouragement and prayers and support and love.
This time seems so surreal and to feel my phone buzzing all day long with encouraging messages and love and prayers being sent our way means SO MUCH! It helps us to feel connected to this amazing network of love. Thank you.
We are supposed to be having a family meeting with the Dr’s and Staff here at Children’s around noon today and should know the outcome of the bone marrow biopsy and spinal fluid tap (these were done yesterday afternoon) and have more ideas about what the plan is moving forward.
The staff here is amazing and we are so thankful.
I slept in the room with Geli last night and Jon slept in the playroom on the teeniest little couch. Originally they set us up with a room in the Easter Seals house, but due to certain circumstances we both stayed close. More on that soon.
Wow she’s such a trooper. Praying for her and your family. I wish I had more to say, but you are all on my mind so much and I say prayers for you whenever I think of you. Sending you lots of love. Thank you for updating!
hi Patti like i said on june 4th comments in your blog – that you are not alone and that God is in control and that you are surrounded with prayers. i am still standing on that faith. thank you for keeping us update on what is happening so i know what to continue to pray for. it will all work out love and many prayers
Hey Patti….we are praying down here in Portland for Angelica and are keeping up-to-date on all the news. Thank you for the blogs! Remember that you all are NEVER alone 🙂
Kelly
thanks for the update — still praying for complete healing!
We are with you in our hearts and in our prayers. Just sent Sevuloni an e mail asking him to join his prayers with all here believing Gods Word for a miracle for Angelica. We love you Jelli, Jon and Patti. Grandpa and Grandma Jer.17:14Heal me Oh Lord and I shall be healed’save me and I shall be saved:for YOU are my praise.
My prayers always with you. I am expecting a miracle and Geli will be will well faster by the touch of our Lord and this will amaze the medical world.