UP… next

WELL… We’ve been in the hospital for 12 days now and most of those were spent getting Angelica healthy again (read here).  Her next round of chemo was to start when her blood counts were up to the right level and we were aiming for Tuesday. It seems that she was starting to feel better just in time, and would go straight into the next round without any days of actually feeling ok.

BUT… they were overbooked for the procedure room where they have to do the bone marrow biopsy before the next round starts so after a brief consultation in the morning they decided to wait one more day and start today.  I called Patti and then called the kids school and got Jeremy and Xandra out.  Patti picked them up and brought the other two boys in to see us and we actually got one day to see each other.  ALL SEVEN OF US TOGETHER FOR ONE DAY!!!  The weather was great and we went to Red Robin, Granville Island and Safeway (Gelica needed some snacky foods). It wasn’t enough time to make up for all the time we’ve spent apart, but it was great and totally unexpected.

THEN… As Angelica had not started her chemo yet she could go to the oncology teen group.  (they go out every four to six weeks and do some cool activity.)  They were going glow-in-the-dark bowling and having pizza.  Geli didn’t know if she could do the pizza so she brought her own soup and snacks and went and had a great time.  It was so great for her to have  a day to take her mind off of the hospital and enjoy herself before the next round.

FINALLY… today came and we started the next round. We got a bone marrow biopsy, a lumbar puncture with a small dose of chemo in her spinal fluid, six hours of pre-hydration and then a huge yellow bag (actually 1 small bag and two huge bags) of chemo that run for 24 hours.  Once this is in her, she will get another bag of liquid to stop the chemo from going to far and then a flush that should take most of the active chemo out of her system, and this takes another 2 – 3 days.  Best case scenario we go home Sunday.

PLEASE… Pray that Angelica does not develop mouth sores (known as mucositis), the most common side-effect of this drug.  Please pray that she flushes the drug quickly.  Please pray that she has great peace and confidence that things will go well for her.  Pray that Patti has peace at home, and that we would all be together as a family again really soon.

FROM… Jon

Author: Patricia Culley

I'm the ringmaster of my own circus. Just trying to stay one step ahead of the monkeys.

7 thoughts on “UP… next”

  1. Praying and Believing- for Miracles, Confidence, Courage, Strength and Peace and so much more.
    Thanking God for so many miracles so far and for such a wonderful day to be together.
    Love you all so very much! xox

  2. Just checking in to see where you are in your journey. Will be praying for you and your family tonight. I pray that Angelica reacts well to this round and that you can be reunited as a family as soon as possible.

  3. 🙂 Praising God with you,for His provision of this family time & fun outings–especially for Geli!!! 🙂
    We continue to pray His healing and strength.
    “They that wait upon the Lord, SHALL renew their strength.

  4. Dear Jon, Patti, Angelica & All;
    You all are amazing, & we pray daily for you as you are supported by ‘the Everlasting Arms.’ Praying for more times for you to be all together, & for you always to be fully concious of His presence that is closer than any kinship on earth.
    You all are being ‘tried by fire and will come out of this pure as gold!’ Thanks Jon,for your clear, concice reports! They help greatly in our times of prayer. Love, GGPA & GGMA.

  5. P.T.L for answered prayer. Still standing with you in believing prayer for this time as you are home to-gether Much love Grandma

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