We want to go home

I’ve walked the hallway from Children’s Hospital to Women’s Hospital more than 50 times in the last two days. It’s been such a blessing to have both Patti and Geli on the same floor, just down the hall from each other, but at the same time it’s been a hassle.

Geli had a “bad” day yesterday. She was “NPO” which means no food or water from the midnight before and then was taken downstairs for another bone marrow biopsy and then a Lumbar Puncture (an LP is a hole made in the back to get some spinal fluid so they can do a biopsy on that.) For the procedures she was sedated and then received an anesthetic, and a side effect can be nausea. Then she received more chemo (there are multiple forms of chemo that attack different things), which also causes nausea. So yesterday afternoon she had a slight fever, nausea and was throwing up.

There is also the risk that she has picked up an infection somewhere and the symptoms of that are… nausea and fever. (hence the post from yesterday.) There is a magic number of 38.5 C. If her temp goes above 38.5 then we get an automatic treatment of antibiotics and 10 more days in hospital. She stayed below, albeit just below and has been feeling better today, but she hasn’t completely rebounded. She had a few tests today and everything was within an acceptable range, but they are still monitoring her. If there is a fever that develops then our chances of going home soon are gone.

We are asking for serious prayer that she has NO INFECTIONS, that her temp stabilizes, blood sugar stabilizes and that she is able to eat and drink normal amounts. Patti has just about stayed as long as she will be allowed in the maternity ward and really does not want to go home to 3 kids with a newborn and no husband to help.

Please pray.

Author: Patricia Culley

I'm the ringmaster of my own circus. Just trying to stay one step ahead of the monkeys.

10 thoughts on “We want to go home”

  1. Hi Jonathan,

    We will be lifting all of you up in prayer. We are trusting God for Gelli’s temperature be normal, no infections and that every part of her body comes in to line with God’s word, and that you would all go home together. God bless you all.

  2. Dear Patti and Jon,
    Sorry we have not written but please know you are constrantly in our prayers that God will take the temperature down, that the chemo will work (always with God’s hand) and that strength will continue to flow to Geli and all of you. Love you lots and lots,
    Aunty Hope & Aunty Ruth

  3. My heart aches for you all!!

    Father, God, Savior — have mercy on Geli — give healing to her body, mind and soul — give comfort and peace to Patti — give strength and perseverance to Jon and the family! Bless them Lord — protect them in the shadow of your wing.
    Amen — so be it!

    We love you and will continue to pray!!

    Lalainia,Brad and family

  4. Dear Patty and Jon,
    Please forgive us for not contacting you but please know that you are in our prayers constantly. We know that the Lord is with us every hour of every day healing us, guideing us and just putting His marvelous arms around us and loving us big time.

  5. So lovely to spend time with you three today and to get to cuddle little Judah. He is so sweet, so soft and so lovely to hold. Such a blessing. Praying you get as much sleep as possible tonight. Underneath you are the everlasting arms of the Father…. He carries those with young in His bosom… So tenderly, even as you are holding Judah and loving on him… remember Father is doing the same with you all… Oh How He loves you. x

    Good night my sweet Judah, everyone at home is gently sleeping, Nana Karen loves you xox

  6. Dear Patti and Jon and Geli

    I definately am praying for all of you. I was so hoping you all get to go home all at same time today.

    Prayer changes things.

    God i ask you to fight the battle and that there is no fever You are a God of miracles. Nothing is impossible for you God. Send them all home to Langley at same time healthy and well. Protect the siblings that they do not bring home any illness. Protect their home. Protect them at all times. In Jesus Name.

    Debra

  7. Geli, Patti & Jon; Our love and prayers are with you daily! We have His promise, “Fear not, for I am with you. Be not dismayed for I am your God. I will strengthen you, yes, I will help you. I will uphold you with My righteous right hand!” Isaiah 41:10. Have a good night resting on His promise. – “I will both lie down in peace, and sleep; for You alone, O Lord, make me dwell safely!” Psalm 4:8. Loads of love, Grandpa Dave & Grandma Phyllis.

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