Jon’s phone has that stupid feature where it guesses what word you are trying to type when you are texting. He was getting quite frustrated when they were in the hospital because it kept substituting words for him that he didn’t want or need. At one point, he was trying to type “lol” and he typed “lol” into the phone and pressed send…..it sent through “lollipop” and it made us laugh….it’s not really very funny, but at that point it was one of those “laugh or cry” scenarios and well….ya might as well laugh.
From that point on, “lollipop” meant “lol”…..
Angelica and Jon are home.
They came home last night around 6:00pm. Angelica is still not feeling one hundred percent and they could and would have kept her but she “sort of” wanted to come home. “Sort of” meaning that she really didn’t want to be in the hospital, but she really wasn’t feeling well enough to be making a choice either way.
They haven’t really been able to figure out what was wrong with her. They have ruled out a bacterial infection, and so at this point it could be viral or it could be something called the “Ara-C Syndrome”. Regardless, of everything, the headache is the WORST. On a scale of 1 to 10…she has pretty much had a constant headache in the 4-8 range for the past 6 days….it’s been bad enough that she’s been prescribed some morphine to be able to deal with it. But, the morphine TOTALLY drugs her right out. It’s equal parts sad and amusing. She hasn’t had any morphine since she came home AND she’s only barfed once…..both of these are massive, MASSIVE improvements over how’s she’s been feeling the past few days.
Her fever is gone. Her headache is typically around a 2-4 and now if she could just start eating and drinking a bit more….then I think that she could get a bit more energy……
She is headed back into Children’s tomorrow morning with an 8am appointment to have one more lumbar puncture and one dose of an IV chemo and then hopefully, we are praying that this next week is a quite AWESOME AMAZING WEEK.
Currently, most of her blood counts are doing really well, considering. They are not normal, but they are on the high end of low and if she was just feeling a bit better, then this could be a really great week for her (and us).
My one sister is taking Jeremy camping this week and my other sister has already taken Xandra camping. I’m hoping and praying that with just Geli, Siah and Judah that I’ll actually be able to get caught up on some things around the house.
There are too many things that have been missed or left undone or, worse, left to pile up and I feel like I can see that I “might get to the place” where I could see the light at the end of the tunnel….as far as my house “stuff” goes…..
Oh well, here’s hoping and praying for that quiet week…..