After what seemed like Angelica settling down and probably going home this morning, she spiked a fever last night. Because there are no white cells in her body right now, she has no immune system and cannot fight infection. Any fever is treated as a worst-case scenario until it is proven otherwise. So immediately they put antibiotics in her IV and then gave her Tylenol. Patti is going to go home today with Judah and I am going to stay with Angelica.<\/p>\n
This is not what we wanted, but it is the reality of what we are dealing with. For the next few months, we have to take Gelica’s temp several times a day and any spike in temperature, we have to be here at Children’s within an hour. Then the protocol will go like this:<\/p>\n
First they start antibiotics, then they draw a fair amount of blood to run a culture and see if the problem is viral or bacterial. If it is viral, then they will treat what they can and we might go home, or if it is bacterial, then we stay for the length of the antibiotic treatment. The blood culture takes between 2 and 3 days, and antibiotics take between 10 and 14 days. SO… ANY fever this summer means 3-14 days in Children’s. (This is on top of the dozen or so outpatient appointments that we have to be here for.)<\/p>\n
So for the next few months, we have to be very clean and careful.<\/p>\n
Thanks for all of your prayers and comments. Thanks to those that have brought food to our house for the other kids to have while we are out. Thanks for the visitors that have come and thanks to the visitors that didn’t come because they were sick. Please continue to lift us in prayer through this summer.<\/p>\n
Jon<\/p>\n","protected":false},"excerpt":{"rendered":"
After what seemed like Angelica settling down and probably going home this morning, she spiked a fever last night. Because there are no white cells in her body right now, she has no immune system and cannot fight infection. Any fever is treated as a worst-case scenario until it is proven otherwise. So immediately they … Continue reading “A bit of what life is like now”<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[19,8,10],"tags":[],"class_list":["post-1073","post","type-post","status-publish","format-standard","hentry","category-gelica","category-health","category-jon"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_likes_enabled":true,"_links":{"self":[{"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/posts\/1073","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/comments?post=1073"}],"version-history":[{"count":1,"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/posts\/1073\/revisions"}],"predecessor-version":[{"id":1074,"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/posts\/1073\/revisions\/1074"}],"wp:attachment":[{"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/media?parent=1073"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/categories?post=1073"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/xangelle.com\/dailygrind\/wp-json\/wp\/v2\/tags?post=1073"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}